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Showing posts from April, 2011

My Eleven-Year-Old Hero

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Sheā€™s eleven years old and sheā€™s already my hero. Sheā€™s not on the spectrum, but sheā€™s anything but typical. With a heart of compassion and a fiery, stubborn temper, she burst into our lives like every color of the rainbow. As she grows, her quirky mirth continues to bubble over, infecting us all -- especially her brother. Whether heā€™s mired in anxiety or sorrow, anger or guilt, she can pull him free -- sometimes with love and sympathy; sometimes with sass and attitude. She doesnā€™t overthink it, like I do. No hand wringing, no furrowed brow. Her hand might be on her hip; she may be crossing her eyes and sticking out her tongue.  Whatever sheā€™s doing, she doesnā€™t pull her punches. And it works: one way or another. Whether heā€™s pulled from his darker thoughts to laugh and engage or only to holler, ā€œMOM! Tell her to stop!ā€ I canā€™t help but feel immense gratitude. She teaches me how to cope, how best to react. And sheā€™s only a little girl.   When she wa...

Don't use the Magic Word

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[ Rant / r ă nt/ : to speak or declaim extravagantly or violently; talk in a wild or vehement way; to rave.]   T hereā€™s a new magic word. Itā€™s nothing like the one your mother taught you. In fact, mothers everywhere will be horrified that Iā€™m calling it magic. Iā€™m horrified myself.  But the word frustrates me. It mystifies me.  I canā€™t get past it ā€“ itā€™s everywhere I turn. Itā€™s thrown into modern literature without profit, adding nothing. It clutters movies, like the intake of breath.  And it seems to have power ā€“ like magic. My motherā€™s magic word was a good word. Simple and useful ā€“ a word that got me second helpings at dinner or juice.  This new magic word can get you things too, Iā€™m afraid. An R rating, if itā€™s used twice. A nice write up in Rolling Stone if you use it in your song lyrics. Critical acclaim for novelists ā€“ maybe even an award. In fact, I can hardly find a novel to read anymore without running into the magic word. Doesnā€™t th...

I'm Jumping On the Spectrum

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ā€œWash your hands for dinner!ā€ Drew comes toward the sink and then takes a step back. ā€œMom.  I canā€™t.ā€ I look at the faucet, covered in soap suds. ā€œHang on,ā€ I say, liberally dousing it with water until the bubbles are completely gone.  ā€œThere you go.ā€ He steps up to the sink and washes his hands. Bubbles.  He canā€™t even stand the word.  The sight of them makes his stomach twist.  He forces himself to tolerate hand soap, but prefers hand sanitizers that donā€™t create suds.  I shudder to think about how he washes his hair ā€“ or doesnā€™t.  There was a time when I would have tried to understand ā€“ tried to rationalize it for him.  Theyā€™re just bubbles.  He likes clean things ā€“ whatā€™s cleaner than a soap bubble? I donā€™t do that anymore.  Iā€™ve learned that sometimes itā€™s best to jump on the spectrum with him. How can I say that?   Isnā€™t drawing him toward a typical life view the best thing for a kid whoā€™s so ā€œhighā€ on the spectrum tha...